Spina Bifida Association of Kentucky, Inc. : About Spina Bifida : Resources

Resources

Spina Bifida Information Resources

Spina Bifida Association
The Spina Bifida Association (SBA) serves adults and children who live with the challenges of Spina Bifida. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service.

The Centers for Disease Control & Prevention and Control (CDC) - This site has a fact based overview of Spina Bifida, Living with Spina Bifida at Any Age, and Personal Stories from people affected by Spina Bifida.

Babycenter Spina Bifida Kids Message Board
Want to learn more about parenting a child with Spina Bifida? Join the more than 400 parents who share their stories, ask questions, impart tips, and support each other on this vibrant message board. These moms and dads answer questions honestly and compassionately based on their experiences and gathered knowledge.

Spina Bifida Clinics, Hospitals, and Health Departments:

Norton Children’s Hospital
Services and programs cover nearly every aspect of care and treatment for children – all in a child friendly, family centered atmosphere.

Shriners Hospital for Children-Lexington
Shriners Hospitals for Children® has been a leader in pediatric orthopaedic care since 1922.

Monroe Carell Jr. Children’s Hospital at Vanderbilt
The Spina Bifida Program at the Monroe Carell Jr. Children’s Hospital at Vanderbilt addresses the unique needs of individuals diagnosed with Spina Bifida.

Riley Hospital for Children in Indianapolis
The Spina Bifida Clinic provides comprehensive multidisciplinary care to children and adolescents with spina bifida.

Cincinnati Chidren’s Hospital
The Center for Spina Bifida Care at Cincinnati Children’s Hospital Medical Center provides comprehensive, family-centered medical care to infants, children and adolescents with repaired myelomeningoceles and other neural tube defects.

Kentucky Health Department Listings ( Updated January 2019)

Commission for Children with Special Health Care Needs
Our mission is to enhance the quality of life for Kentucky’s children with special health care needs through direct service, leadership, education and collaboration.