SPINA BIFIDA INFORMATION
Spina Bifida Association
The Spina Bifida Association (SBA) serves adults and children who live with the challenges of Spina Bifida. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service.
The Centers for Disease Control & Prevention and Control (CDC) - This site has a fact based overview of Spina Bifida, Living with Spina Bifida at Any Age, and Personal Stories from people affected by Spina Bifida.
Babycenter Spina Bifida Kids Message Board
Want to learn more about parenting a child with Spina Bifida? Join the more than 400 parents who share their stories, ask questions, impart tips, and support each other on this vibrant message board. These moms and dads answer questions honestly and compassionately based on their experiences and gathered knowledge.
SPINA BIFIDA CLINICS & HOSPITALS
Norton Children’s Hospital (Louisville, KY)
Services and programs cover nearly every aspect of care and treatment for children – all in a child-friendly, family-centered atmosphere. NCH also offers a Spina Bifida Multidisciplinary Clinic.
Shriners Hospital for Children (Lexington, KY)
Shriners Hospitals for Children® has been a leader in pediatric orthopedic care since 1922.
Monroe Carell Jr. Children’s Hospital at Vanderbilt (Nashville, TN)
The Spina Bifida Program at the Monroe Carell Jr. Children’s Hospital at Vanderbilt addresses the unique needs of individuals diagnosed with Spina Bifida.
Riley Hospital for Children (Indianapolis, IN)
The Spina Bifida Clinic provides comprehensive multidisciplinary care to children and adolescents with spina bifida.
Cincinnati Children's Hospital (Cincinnati, OH)
The Center for Spina Bifida Care at Cincinnati Children’s Hospital Medical Center provides comprehensive, family-centered medical care to infants, children, and adolescents with repaired myelomeningoceles and other neural tube defects.
Kentucky Counties Health Department Listing
FAMILY & CHILDREN SUPPORT SERVICES (KY)
SBAK Outreach & Services Sarah Richardson - email@example.com (502) 637-7363
Ky Dept of Education, Special Education Services
Kentucky Office for Children with Special Healthcare Needs
Build Inclusion (Education, Employment, and Independent Living)
Cardinal Hill Child Development Center and Adult Day Health
Commonwealth Council on Developmental Disabilities
Easter Seals (Western Kentucky)
Ky Special Parent Involvement Network (KY-Spin)
Kids Center for Pediatric Therapies
The Kidz Club Pediatric Extended Care
Sproutlings Pediatric Daycare and Pre-School
Americans with Disabilities Act
Commonwealth of Kentucky Cabinet for Families & Children
Social Security Disability Benefits
Wheelchairs, Seating & Mobility
Orthotics & Prosthetics Services
ACCESSIBILITY & TRANSPORTATION
Mobility Works Wheelchair Vans
Guide to Vehicle Modifications for Persons with Disabilities
ADAPTIVE SPORTS & ACTIVITIES
Central Kentucky Riding for Hope
ADVOCACY AND OTHER INFORMATION
American Association of People with Disabilities
International Federation for Spina Bifida and Hydrocephalus