The mission of the Spina Bifida Association of Kentucky is to build a better and brighter future for all those impacted by Spina Bifida.  

In 1983, two mothers of children with Spina Bifida were frustrated with the lack of information and resources available to both parents and doctors about Spina Bifida and Hydrocephalus.  Along with a local physician, they formed the Spina Bifida Association of Central Kentucky in Lexington.  In 1986 the association was renamed The Spina Bifida Association of Kentucky and the offices were moved to Louisville, where they remain today.

The Spina Bifida Association of Kentucky is a resource center for the children, adults, and families impacted by Spina Bifida. SBAK educates parents on how to be the best advocate for their child and helps children and adults learn how to advocate for themselves through programs and services that help them overcome physical, cognitive, and social challenges to become successful and independent.

The Spina Bifida Association of Kentucky is an affiliated chapter of the Spina Bifida Association of America.